What We Do

We will be involved in providing information about Idiopathic Calcinosis diseases making it more readily available and easier to read, as well as providing the neccessary funds to support medical researchers and health centres to carry out more studies so that we can have a better understanding of these rare diseases. 

We are paying particular attention to Idiopathic Scrotal Calcinosis, (SC) Idiopathic Cutis of the Penis (ICP) and Idiopathic Vulva Calcinosis (IVC). Information which is available to the public about these conditions is complex and written in a way which makes it difficuilt to diggest. We will therefore translate this information into readable documents and make them available on our website.

We will also be providing the neccessary funds to support medical researchers and health centres to carry out more studies and reasearch so that we can have a better understanding of these rare diseases.

Idiopathic Calcinosis Research (ICR) collects donations through various means and uses those funds to support medical research.

We:

A) Collect donations;

B) Support medical institutions to conduct medical research - wether this is surgical or survey based;

C) Promote the awareness of rare disorders;

Medical research is conducted to find the cause of a group of rare diseases, and to find possible answers in finding out:

A) If they trigger other disorders; and

B) If they have any significant factors that may pose a threat; and

C) If there is any early prevention measures; and

D) To provide answers to as many questions as possible, like "does having Idiopathic Scrotal Calcinosis affect my sperm", "Are there any links to cancer cells" etc.